Our work with patient organisations

The work of patient organisations is vital to the lives of people with healthcare needs and their families.

Partnerships between the pharmaceutical industry and patient advocacy groups are central to the pursuit of better health outcomes.

Working cooperatively with patient organisations is fundamental to understanding patients' perspectives. We are committed to putting the patient voice at the heart of all we do.

Advocacy partnership typically involves a focus on one or more of the following areas:

  • Disease awareness

  • Access to medicines and medical devices

  • Shaping health policy

  • Improving diagnostic pathways and patient journeys

Forward together, aiming high

On behalf of patients, we have high expectations to collaborative advocacy among all stakeholders: pharmaceutical companies, policymakers, research bodies, clinicians, and patient advocacy groups. Our ambitions for advocacy partnership:

Patients in focus, always  

 To ensure focus remains on patients, project participants must continually ask: Are we addressing patient needs? How are we improving their quality of life? Are patients being involved in the decisions that impact them?

Go for impact   
 

Historically, patient organisations have experienced barriers to their full participation in collaboration with their many stakeholders.

Think big, go big  

Support new, better ideas. Have confidence to make noticeable improvements to the patient experience.

Breaking barriers

Historically, patient organisations have experienced barriers to their full participation in collaboration with their many stakeholders. We recognise the challenges that patient organisations face and want to help overcome them. Only this way can collaborative advocacy bring about the best outcomes for patients.

What to expect from us

Placing patient needs at the centre of our activities,

  

adopting an inclusive, supportive and collaborative approach which provides mutual benefit.

Striving for the highest standards of transparency and integrity,  

acting courageously while fully embracing the spirit of the ABPI Code and UK law.

Clearly communicating with patients and patient organisations  

about our activities, how we operate, and why.

MAT-XU-2205711 (v1.0)
Date of Preparation January 2023